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Item # Length Source of Standard Year Implemented Version Implemented Year Retired Version Retired
531 1 NPCR 2022 22

NAACCR XML: Tumor.edpMdeLink

Description
Data linkages between the NPCR and the National Breast and Cervical Cancer Early Detection (NBCCED) and/or Colorectal Cancer Early Detection (CRCED) programs are to capture post-linkage information at the patient and tumor level. Information on the fact (Early Detection Program Minimum Data Element (EDP MDE) Link variable) is to be reported in this data item. For reportable breast, cervical, and colorectal cancer cases, use the EDP MDE Link variable to record results from the registry’s data linkage with the appropriate NBCCEDP/CRCEDP program(s) in the state/territory/jurisdiction. The EDP MDE Link variable identifies breast, cervical, or colorectal cancer cases in the registry database that matched the same patient and tumor in the NBCCEDP/CRCEDP data set, indicating that the cancer was identified through that screening program (i.e.; patient Jane Doe right breast infiltrating duct carcinoma diagnosed in 2004 in the registry database matched the same Jane Doe right breast infiltrating duct carcinoma diagnosed in 2004 in the NBCCEDP data set).
Rationale
This data item classifies those cancers first identified through the screening programs and allows analyses to evaluate trends, identify disparities, and evaluate program success. This linkage process also has the potential to identify cancers not reported to the cancer registry.
Codes
0Breast, cervical, or colorectal cancer record sent for linkage, no match for this cancer with the Early Detection Program (EDP) data
1Breast, cervical, or colorectal cancer record sent for linkage, match for this cancer with EDP data
BlankBreast, cervical, or colorectal cancer record not sent for linkage, or linkage results are pending, or record not a breast, cervical, or colorectal cancer




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