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Item #
Length
Source of Standard
Year Implemented
Version Implemented
Year Retired
Version Retired
3917
1
NAACCR
2018
18
NAACCR XML: Tumor.primarySclerosingCholangitis
Description
Primary sclerosing cholangitis denotes a chronic autoimmune inflammation of the bile ducts that leads to scar formation and narrowing of the ducts over time. It is a prognostic factor for intrahepatic bile duct cancer.
Rationale
Primary Sclerosing Cholangitis is a Registry Data Collection Variable in AJCC. This data item was previously collected for Intrahepatic Bile Duct, SSF# 11.
Codes
0
PSC not identified/not present
1
PSC present
8
Not applicable: Information not collected for this case
(If this information is required by your standard setter, use of code 8 may result in an edit error.)
9
Not documented in medical record
PSC not assessed or unknown if assessed
Each Site-Specific Data Item (SSDI) applies only to selected primary sites, histologies, and years of diagnosis. Depending on applicability and standard-setter requirements, SSDIs may be left blank.
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