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From: [email protected] (Michael Holloway)
Subject: Transplant Recipients Newsletter, April `93[D[D[D[D[D[D[D[D[D[D[D[D[D[D[D[D[D[D[D[D[DInternational Newsletter, April `93
This will be the first of monthly postings of the newsletter of
the Long Island Chapter of the Transplant Recipients
International Organization (TRIO). Unfortunately, I was unable
to post it before the date of this month's meeting. I'm
posting it anyway, and posting it world-wide instead of
regional, in the hopes that some of the information may be
useful or illustrative. Also, I hope it can be used as an
example and inspiration for the posting of other newsletters
and data related to organ transplantation and donation.
Mike
Transplant Recipients
International Organization
Long Island Chapter
P.O. Box 922
Huntington, NY 11743-0922 NEWSLETTER
516/421-3258
APRIL 1993
VOLUME IV No. 8
NEXT MEETING
The next meeting is WEDNESDAY APRIL 14 at 8 pm at the Knights
of Columbus Emerald Manor, 517 Uniondale Avenue in Uniondale.
Our guest speaker will be Dr. Lewis Teperman. Dr. Teperman
trained in Pittsburgh under Dr. Starzl and is now the Assistant
Director of the Liver Transplant Program at New York University
Medical Center. Dr. Teperman will discuss current trends in
transplantation and treatment and will answer questions. He is
a long time friend of TRIO, surgeon to many of our members, and
always a gracious and delightful guest. It is sure to be a
very informative, interesting and engaging evening. Our
hospitality committee, Bette and Vito Suglia and Jim Spence
will be well prepared, and at last the weather should be
cooperative. We hope to see a very large gathering to welcome
Dr. Teperman.
WEDNESDAY APRIL 14 K of C UNIONDALE
LAST MEETING
It has been noted here before that the Long Island Chapter of
TRIO has extraordinary power in predicting bad weather, being
able to forecast rain, sleet and snow fully a month in advance.
No TV weatherman can match us. This time we not only scored
again, but we were also able to disable the Long Island
Railroad, making travel REALLY difficult. None the less, many
braved the snow and we had an interesting meeting and good
conversation. Our scheduled speaker, Mrs. Elizabeth Linnehan,
a professional nutritionist, had a family emergency and was not
able to attend. She hope she will be with us in the fall to
discuss diet and medications. However, Ms. Jennifer Friedman,
an image consultant and sister of a liver transplant recipient
was kind enough to step in on very short notice. Ms. Friedman
gave us a lot of good advice about choosing clothes and makeup,
(even a bit for men) to help us look well and healthy and to
minimize some of the cosmetic effects of some of the medicine
and drugs we take. We are most grateful to Jennifer and thank
her for an entertaining evening.
ANNUAL MEETING
In addition to welcoming Dr. Teperman, the April meeting is
also the Annual meeting of the Chapter. This is the official
notice of the meeting as required by our By-Laws. The main
purpose of the meeting is to review the past year, solicit
member views and ideas for better ways to meet their needs, and
to elect members of the Board of Directors for the coming two
year term. The nominating committee has prepared the following
slate for the Board.
Anne (Liver Recipient) and Don Treffeisen
Robert (Heart Recipient) and Eulene Smith
Vito (Kidney Recipient) and Bette Suglia
Kay Grenzig (Liver Recipient)
Jan Schichtel (Kidney Recipient)
Larry Juliano (Kidney Recipient)
David Bekofsky (Director Public Education LITP)
Those remaining on the Board for another year are:
Robert Carroll (Liver, Kidney & Pancreas Recipient)
Jerry (Kidney Recipient) and Jeanne Eichhorn
Ron (Kidney Donor) and Marie Healy
Peter Smith (Bone Marrow Recipient)
Patricia Ann Yankus (Kidney and Pancreas Recipient)
Walter Ruzak (Kidney Recipient)
This may seem to be a big Board, but many hands make light work
and with our various medical uncertainties, it is good to have
backups for all the jobs on the Board. Therefore, in addition
to the slate being presented for voting, nominations will also
be accepted from the floor. There is no set number of Board
members and there is plenty of work.
In addition, brief treasurer's and membership reports will be
given and the floor will be open for any new business,
suggestions, or comments anyone would like to bring up.
We will keep the formal meeting short so that we can spend the
majority of the time with Dr. Teperman.
FUTURE MEETINGS
Remember the scheduled guests for the rest of the year.
May 12 Dr. Peter Shaprio, Chief of Psychiatry
Columbia Presbyterian Medical Center
June 9 Dr. Felix Rappaport, Director of the Stony
Brook Kidney Transplant Program.
Plan on being with us the second Wednesday of each month.
NOTDAW
The week of April 18-24 is National Organ and Tissue Donor
Awareness Week. NOTDAW. While we are planning news releases,
speaking engagements and meetings with Supervisors Gullata and
Gaffney, we have decided not to have our softball game
because of two year's experience with miserable weather.
We all can help spread the word on donor awareness, however. We
have found it effective to ask your pastor, or rabbi to publish
a letter or announcement in the parish bulletin, allow you to
address the congregation, or include mention of the gift of
life in his sermon. Attached to this Newsletter is a sample
letter and fact sheet you can use. Thank you.
DR. STARZL TO BE HONORED
The Long Island Chapter of the American Liver Foundation will
hold its annual Auction and Dinner Dance on May 7th at the
Fountainbleu on Jericho Turnpike in Jericho. Dr. Thomas
Starzl will be the honored guest. Tickets are $50 person and
are going fast. If you'd like to meet Dr. Starzl, call Anne
Treffeisen at (516) 421-3258 for details.
MEMBERSHIP NEWS
Congratulations to Al Reese. Al received his heart transplant
in Pittsburgh after waiting 3 1/2 years. He is home and doing
well after only 12 days in hospital.
Arthur Michaels, liver recipient, is planning to run the Boston
Marathon in April. What fantastic proof that transplantation
works! We hope the national press notices.
Bob McCormack, after a persistent bout with infection, had his
transplanted kidney removed. He is home now, back on dialysis
and feeling better.
Nicole Healy, kidney recipient and daughter of Ron and Marie,
spent the past several weeks in hospital in Miami with problems
encountered on vacation. Marie has been with her in Florida.
They are back in New York where Nicole's treatment will
continue. We wish Nicole a speedy recovery.
Kay Grenzig, liver recipient, is mending now after a bad fall
that resulted in a broken arm and a broken leg. Kay is a
candidate for the Board so we need her well soon.
And best wishes to all coming out of the flu. It was a tough
winter for many, but the tulips are just under the snow.
SEE YOU......WEDNESDAY APRIL 14 8 PM K of C UNIONDALE
DR. LEWIS TEPERMAN
