file.newsgroup.med.59013 Maven / Gradle / Ivy
From: [email protected] (Marlene J. Stern)
Subject: Recurrent Respiratory Papillomatosis
We will be holding a bake and craft sale at Communiversity in Princeton on
Nassau Street, Saturday April 24th 12-4 p.m. to benefit the Recurrent
Respiratory Papillomatosis Foundation, a nonprofit foundation established to
encourage research toward a cure for Recurrent Respiratory Papillomatosis. Our
three year old daughter suffers from this disease. Below is a press release
that appeared in local newspapers. Hope you can join us.
On Saturday, April 24 as part of Communiversity in Princeton, a local family
will be having a bake and craft sale to raise money for and create public
awareness about a rare disease called Recurrent Respiratory Papillomatosis.
Bill and Marlene Stern's daughter Lindsay is afflicted with this disease
characterized by tumors attacking the inside of the larynx, vocal cords and
trachea. Caused by a virus, the tumors grow, block the air passages and would
lead to death from suffocation without continual surgery to remove the growths.
Three year old Lindsay has undergone 11 operations thus far since her diagnosis
last year and faces the prospect of over a hundred operations throughout her
lifetime.
Even though the disease is hardly a household word, it has affected the lives
of enough people to inspire the formation of the Recurrent Respiratory
Papillomatosis Foundation, a non-profit foundation whose goals are to provide
support for patients and families by networking patients and publishing a
newsletter, enhance awareness of RRP at the local and national level, and aid
in the prevention, cure, and treatment.
Since medical researchers know that the virus causing the disease is similar to
those viruses causing warts, they feel a cure would be within reach if money
were available for research. Because RRP is rare, it not only gets scant
attention but also paltry funds to search for a cure. Part of the RRP
Foundation's mission is to change that.
Anyone interested in contributing items to the bake and craft sale, please call
Marlene or Bill at 609-890-0502. Monetary donations can be made at the
Foundation's booth during Communiversity, April 24th, 12 to 4 p.m., in downtown
Princeton, or sent directly to:
The Recurrent Respiratory Foundation
50 Wesleyan Drive
Hamilton Sq., NJ 08690.
Thanks [email protected]